Posts tagged ‘cancer’

December 29, 2020

What You Need to Know that You Might Have Missed

During the year-end holiday period, I usually find it a good time to reflect back on the previous 12 months and think ahead to the new year. With the wild ride that has been 2020, I’m enjoying the moment to catch my breath. I hope you’re able to do the same.

As I look back over 2020, I thought I would take a bit of time to share with you some items you might have missed during your busy, crazy year.

My Top Blog Posts:

First, because I recognize that you can’t read everything that crosses your desk, I’ve put together a list of my top ten most-read posts published in 2020, in case you’ve missed any of them:

Legacy Fundraising: The Best of Times or the Worst of Times?

How will Coronavirus Affect Your Fundraising Efforts?

What Can You Learn from “The Naked Philanthropist”?

New Charitable Giving Incentives in CARES Act

Listen to The Whiny Donor and Raise More Money

Coronavirus: 20 Survival Tips for You and Your Charity

10 Fundraising Strategies for Complex & Major Gifts During COVID-19

Is the AFP International Conference in Jeopardy?

Warning Signs You Need to Know About

Amy Coney Barrett Knows Something You Need to Know

Now, I want to give you a list of five of my older posts that remained popular in 2020:

Can a Nonprofit Return a Donor’s Gift?

Can You Spot a Child Molester? Discover the Warning Signs

Here is One Word You Should Stop Using

Get More Repeat Gifts: The Rule of 7 Thank Yous

We All We Got. We All We Need.

I invite you to read any posts that might interest you by clicking on the title above. You can also search this blog by topic using the site’s search function (either in the right column or below).

Blog Site Recognition:

Over the years, I’ve been honored to have my blog recognized by respected peers. I’m pleased that, among the thousands of nonprofit and fundraising sites, my blog continues to be ranked as a “Top 75 Fundraising Blog” – Feedspot, “Top Fundraising Blogs 2020” – Garecht Fundraising Associates, “Best Fundraising Blogs for 2020” – Future Fundraising Now.

To make sure you don’t miss any of my future posts, please take a moment to subscribe to this site for free in the designated spot in the column to the right (or, on mobile platforms, below). You can subscribe with peace of mind knowing that I will respect your privacy. As a special bonus for you as a new subscriber, I’ll send you a link to a free e-book from philanthropy researcher Russell James, JD, PhD, CFP®.

Special Projects:

In 2020, I was honored to have the opportunity to participate in four special projects:

White Paper with Dr. Russell James: “Legacy Fundraising: The Best of Times or the Worst of Times?” (FREE)

Article for SEI Knowledge Center: “Charitable Giving 2020: COVID-19 and Politics Make a Play” (FREE)

White Paper with Rogaré: “Ethics of Legacy Fundraising During Emergencies” (FREE)

Article for the Association of Fundraising Professionals: “A Flight Attendant’s Advice Leads to Soaring Personal Success” (members only)

Best-selling Book — Donor-Centered Planned Gift Marketing:

This year was also another good year for my book, Donor-Centered Planned Gift Marketing. The book continues to be a highly-rated Amazon bestseller. Winner of the AFP/Skystone Partners Prize for Research in Fundraising and Philanthropy and listed on the official CFRE International Resource Reading List, it continues to be a relevant resource for fundraisers who want to start or grow a successful planned giving program.

A LinkedIn Discussion Group for You:

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December 27, 2019

Here are Some Things You Might Have Missed

As 2019 comes to a close, we have a chance to catch our breath and reflect on the previous 12 months. So, I thought I would take a bit of time to share with you some items you might have missed during your busy year. In addition, because some readers have asked about my ongoing battle with cancer, I also want to take this opportunity to update you on my personal situation.

Top 100: Charity Industry Influencers:

One news item in 2019 that might not have caught your attention was the publication of Onalytica’s list of “Top 100: Charity Industry Influencers.” The Onalytica algorithm ranked me number 16 in the world! I found that exciting and, frankly, just a bit scary. I’ll have to be even more careful about what I say. 🙂

Top Blog Posts:

Because I recognize that you can’t read everything that crosses your desk, I’ve put together a list of my top ten most-popular posts published in 2019 in case you’ve missed any of them:

I Told You So: Charitable Giving is Up!

How to Stop Offending Your Women Donors

High Fundraiser Turnover Rate Remains a Problem

Are Donors Abandoning You, Or Are You Abandoning Them?

Do You Want to Know the Latest, Greatest Fundraising Idea?

Do Not Fall for Newsweek’s Fake News!

3 Reasons Why Your Year-End Fundraising Will Fail

Who are Your Best Planned Giving Prospects?

Know When to Stop Asking for Money

Inspired by Lady Gaga: 10 Ways to be a Fundraising Genius

Here’s a list of five of my older posts that remained popular in 2019:

Here is One Word You Should Stop Using

Can You Spot a Child Molester? Discover the Warning Signs

Can a Nonprofit Return a Donor’s Gift?

5 Things Never to Do in Your Phone Fundraising Calls

Impact of Nonprofit Sector: More Than Most People Think

I invite you to read any posts that might interest you by clicking on the title above. You can also search this blog by topic using the site’s search function (either in the right column or below).

Blog Site Recognition:

Over the years, I’ve been honored to have my blog recognized by respected peers. I’m pleased that, among the thousands of nonprofit and fundraising sites, my blog continues to be ranked as a “Top 75 Fundraising Blog” – Feedspot, “Top Fundraising Blog” – Garecht Fundraising Associates, and “10 Fundraising Blogs You’ll Love” – Stelter.

To make sure you don’t miss any of my future posts, please take a moment to subscribe to this site for free in the designated spot in the column to the right (or, on mobile platforms, below). You can subscribe with peace of mind knowing that I will respect your privacy. As a special bonus for you as a new subscriber, I’ll send you a link to a free e-book from philanthropy researcher Russell James, JD, PhD, CFP®.

Articles in AFP’s Magazine, Advancing Philanthropy:

In 2019, I was pleased to have three of my articles published in Advancing Philanthropy, the official magazine of the Association of Fundraising Professionals:

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November 30, 2017

Do the Numbers Tell the Full Story?

I’m back! I haven’t written a new blog post in nearly eight months due to serious health issues. Now, as my recovery progresses, I feel compelled to return to my blog as I have much to share with you. Thank you for your support and patience.

I want to take this opportunity to update you about what the past several months have been like for me while making a useful fundraising point that I believe will be of benefit to you.

Like you, as the end of the year approaches, I’ve been inundated with direct mail, e-mail, and telephone fundraising appeals. Many of these appeals focus on numbers. For example, I’ve read about how one organization won several awards for its theater productions, how another has a $10,000 challenge grant, how another needs to raise an additional $50,000 to meet its goal, and how yet another has helped feed over 500 people during Thanksgiving.

On the other hand, I also received an appeal from the Philadelphia Children’s Alliance, which brings justice and healing to the survivors of child sexual abuse. The appeal, which stood out from the pack, told the story of one child, 5-year-old Sarah. Reading about Sarah’s situation, I learned how PCA helped her. In addition to Sarah’s compelling story, the appeal mentioned that PCA also provided services to over 3,500 other children in need over the past year.

Which charity do you think I’m most likely to support? If you guessed PCA, you’re right.

While numbers can tell part of the story, they can’t convey the whole story the way that sharing the experience of one individual can. Sharing someone’s personal story can make a cause relatable, more real, and more compelling. Stories tap into emotions that statistics simply cannot.

Now, let me try to do a bit of both. I want to update you about my personal situation while using some numbers.

Regular readers of my blog know that I have suffered from the exceedingly rare Appendicial Carcinoma with Pseudomyxoma Peritonei (PMP). I’ve been open about my situation for three years so that readers would understand when I stepped away temporarily and so that others suffering with PMP would know that I am willing to be a resource for them. If you want to learn more about my journey, just search “Pseudomyxoma Peritonei” on this site.

I was diagnosed with late-stage PMP in 2014. My doctors suspect it had been growing in me undetected for nearly a decade. Two months after diagnosis, I underwent successful major surgery. Unfortunately, the cancer came back in 2015. While chemotherapy kept it in check for several months, surgery was again required in April 2017.

This time around, my primary surgery in April was 14 hours long. My follow-up surgery in June was two hours.

I was in the hospital for a combined total of 40 days from April to June. That includes my initial hospital stay, two readmissions for complications, and one follow-up surgery stay.

During my three-month treatment period from April through June, I read 10 books. Hey, I couldn’t always rely on television for good entertainment. I would have read even more books if it wasn’t for the painkillers.

Lisa, my wife, and I spent nearly one-quarter of the year in Pittsburgh, home to the University of Pittsburgh Medical Center’s Shadyside Hospital where I received expert treatment.

I went into the hospital weighing an already diminished 146 pounds. I exited at about 112 pounds. I’m now over 130 pounds and gaining toward my goal of 150 or more. (If anyone wants to help fatten me up, I’m available for lunches. 🙂 )

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March 17, 2017

Delivering More of My Own Bad News

If you’re a longtime reader of my blog, you know that I’ve been in an ongoing battle with cancer since 2014. If you’re a relatively new reader here, I want you to know that I have an exceedingly rare form of cancer known as Appendicial Carcinoma with Pseudomyxoma Peritonei (PMP).

So, why am I once again writing about my health?

The reason is that I’ll soon be undergoing another extensive surgery. That means that for now, and for at least the next few months, I need to focus 100 percent of my energy on preparing for surgery and focusing on my recovery. So, I’ll be taking an indefinite leave-of-absence from my blog, professional life, and most social media activity. I look forward to re-engaging as soon as I am able.

Meantime, if you want to learn more about my situation, just search “Pseudomyxoma Peritonei” on this site using the search bar at the right.

I also want to thank you for being a loyal blog reader and for being supportive of my various efforts, in various ways. I’m already looking forward to the day when we can re-engage.

Finally, I want you to know that I recognize that we all face challenges. So, I’m going to share with you just some of the quotes that have lifted my spirits during my darkest hours; I hope some of them will inspire you as well:

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July 23, 2016

10 Ways To Be Happier Right Now

Do you want to be a better fundraising professional? If so, you need to work on being a happier person.

Sadly, 48 percent of Americans are not very happy.

It doesn’t take a great leap of imagination to understand why. If you pick up a newspaper, tune into the television evening news, search the Internet for the latest current event stories, you’ll find plenty of reasons to not be very happy. You might not even need to look that far. Perhaps, you’re facing economic or health challenges at home, or an uninspiring job that doesn’t pay you what you deserve.

While many things are out of our control, there are nevertheless some steps we can take to enhance our level of happiness. By taking care of ourselves and by building our happiness, we’ll develop stronger relationships with family, friends, co-workers, and supporters of our organizations.

Your level of happiness affects all aspects of your life, personal and professional. That’s why I want to share some tips to help you be happier which will, in turn, lead you to better health and greater professional success. By being happier, you’ll be a more effective fundraising professional.

Think about it. Would you rather be around someone who is happy or unhappy? It’s not really a hard choice, is it?

When I was diagnosed with cancer, I was naturally scared and miserable. After some serious contemplation, I realized that I could be sick and miserable or I could choose to be just sick. Being sick was bad enough. Why would I also want to be miserable, too?

My choice has made it easier for people to stay close to me and to help me when I need it as my fight continues. I’m also convinced that my positive attitude has profoundly benefitted my health; the science backs me up on this. While I certainly don’t like having cancer, I am continuing to enjoy life.

How to be Happy via Life Coach SpotterRecently, Rana Tarakji, of the Life Coach Spotter, sent me a terrific infographic with 10 practical, science-backed tips for helping us to enhance our happiness and, as a result, improve our well-being, relationships, and professional success:

1. Laugh. That’s right. Laugh more. It’s good for you. Laughter reduces physical pain, reduces heart attack risk, increases blood flow, boosts immunity, and enhances energy level.

2. Thank. Feeling and expressing gratitude boosts happiness. The old adage that encourages us to count our blessings and be grateful for what we have has validity. Researchers have demonstrated that expressing gratitude to others actually increases our own happiness.

For example, Dr. Martin E.P. Seligman, the Zellerbach Family Professor of Psychology at the University of Pennsylvania, asked study participants to write and deliver a letter of gratitude to someone who had never been properly thanked for his or her kindness. Following the completion of the task, participants’ happiness scores increased significantly.

See. Not only is thanking a donor good for the donor and your organization, it’s good for you, too!

3. Love. When we send love out into the universe, love returns to us. Those who maintain strong, loving relationships are happier and healthier. Perhaps it’s because we all know the value of love that we often take it for granted. We need to be careful. Love takes work. We need to actively plan to spend quality time with those important to us.

4. Smile. The average person smiles only 20 times per day. By contrast, happy people smile 45 times a day. While happy people are more likely to smile, science has proven that smiling more will make you happier. Even fake smiles will release pleasure hormones that will make you happier. As the Vietnamese Buddhist monk Thích Nhất Hạnh says:

Sometimes your joy is the source of your smile, but sometimes your smile can be the source of your joy.”

5. Meditate. Meditation is not an activity reserved for New Age folks. Anyone can do it and derive benefit from it. There are large varieties of ways to mediate. Personally, I like Guided Imagery.

Meditation offers a number of proven benefits. When I was hospitalized, I found meditation calming. I also found, to my surprise, that it reduced my pain level. To be effective, meditation takes practice. However, over time, you will see the benefits for yourself. You can learn some simple meditation techniques by clicking here.

6. Relax. Years ago, I heard the great sales guru Tom Hopkins speak. He said that to be successful, we need to do the most important thing at any given moment. That does not mean turning yourself into a workaholic. Instead, it means that at times we certainly need to work hard. However, it also means that we need to recognize that, at other times, the most important thing to do is to relax and refresh ourselves. Life balance is essential for happiness.

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January 25, 2016

“It’s Like Déjà Vu All Over Again.”

Recent events in my life remind me of a famous quote from baseball Hall of Fame catcher Yogi Berra:

It’s like déjà vu all over again.”

Since 2014, I’ve kept my readers informed about my battle with a very rare form of cancer, Appendiceal Carcinoma with Pseudomyxoma Peritonei (PMP). My last post on the subject shared the great news that I was in remission despite how advanced the disease was at the time of diagnosis.

Enter Yogi Berra.Yogi Berra Baseball Collection via Flickr

Well, the cancer has returned.

At some point, I’ll require another surgery to remove as much of the disease as possible. Meantime, my medical team has recommended chemotherapy in the hope that it will beat back the cancer and delay the day when surgery will be necessary, by months or even years.

After four rounds of chemo, my two blood cancer markers are on the decline. The chemo is working! So, I will continue with chemo treatments for as long as they are effective.

I’m sharing my news with you for a number of reasons:

  1. Because I’ve been open about my health situation from the beginning, I’ve had a number of readers contact me for an update. So, I felt it appropriate to share my latest news with all of my readers.
  2. Others who also have PMP have contacted me after reading my posts, and as they begin their own fight against this rare disease. I’ve been willing to serve as a resource for these people, and I’m committed to continuing to be a resource because PMP is so rare and finding good information is challenging.
  3. Sharing my story gives me an opportunity to encourage you to be your own healthcare advocate. If you have a doctor who is only interested in treating symptoms rather than looking for and treating underlying causes, fire him or her. Work with doctors who will look for causes. It could save your life.
  4. I want to explain how my health situation affects my work life. Because I cannot predict what condition I’ll be in on a specific date months ahead, I am not accepting conference speaking invitations for 2016. While I’m disappointed to be off of the speaking circuit, the upside is that this will free me up to present more webinars, write more (including a new book), and serve more clients.

While cancer has re-entered my life, I’ve got too much to do to give in to it. So, I’m not. My journey is not an easy one. However, it is one that I am managing.

My work-life focus, throughout my ups and downs, will remain on helping charities raise more money through ethical donor-centered fundraising. I will do this through my work with clients, through teaching opportunities, through media interviews, and through my blog.

Here are some things you can consider doing for me, if the spirit moves you:

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September 30, 2015

Extra! Extra! Updates to 6 Popular Posts

Fundraising news is dynamic. It’s constantly changing. So, I thought I’d look back on some of my more popular posts of the past several months and provide you with important updates to some of those stories.

“Cheating Death”

About a year ago, I outlined my personal battle with a very rare form of cancer: Appendicial Carcinoma with Pseudomyxoma Peritonei. While my recovery following last year’s 14-hour surgery has been good, I hit a bump in the road last week when a post-surgery complication sent me to the hospital for the week. That’s why I haven’t posted and haven’t engaged much on social media.

The good news is that my problem resolved naturally. Now, I’m working on regaining strength and the more than seven pounds I lost. As I return to “normal,” I’ll resume regular blogging and engagement.

I thank you for your patience and support.

“Update: Spelman College Returns Gift from Bill Cosby”

Spelman College terminated the William and Camille Olivia Hanks Cosby Endowed Professorship and returned the establishing donation to the Clara Dog Reads Newspaper by Steve Eng via FlickrElizabeth Jackson Carter Foundation, established by Camille Cosby. The move comes as the negative news surrounding Bill Cosby continues to mount.

Now, Central State University in Ohio has changed the name of the Camille O. & William H. Cosby Communications Center to the CSU Communications Center. The Cosbys had given the University a donation of $2 million to name the Center. It is unclear whether or not the University has returned the contribution. The University has failed to respond to my request for more information.

“Special Report: Hillary Clinton Wants to Limit Charitable Deduction, Could Cost Charities Billions”

As the US presidential campaign season heats up, some candidates have released their tax proposals. Hillary Clinton’s plan could cost the nonprofit sector billions of dollars in voluntary contributions each year. In an unscientific reader poll, 91.67 percent of respondents said they opposed Clinton’s proposal to reduce the charitable giving deduction.

Recently, Jeb Bush released his tax plan which preserves the deduction for charitable giving as it now stands. Donald Trump’s tax proposal also preserves the charitable giving deduction.

When attempting to evaluate which tax proposals will be best for the nonprofit sector, we need to consider a number of factors:

  • Does the proposal preserve the tax deduction for charitable giving?
  • Will the proposal increase personal income?
  • Will the proposal help grow the economy?

The calculus is certainly complex. However, we do know that charitable giving incentives work, that people give more when their personal income is greater, and that charitable giving correlates closely to the growth (or decline) of Gross Domestic Product.

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May 5, 2015

Will You Help Me Celebrate My (Re)birthday?

On May 2, I began my month-long (re)birthday celebration. One year ago, I underwent a 14-hour surgery to remove the rare cancer that had spread throughout my abdomen. The surgery was a success, and I am now in remission!

First Birthday Balloons by akadruid via FlickrPrior to surgery, I was told my life expectancy would be about two to five years. Following surgery, my doctor told me I can expect a full life. That’s why I consider May 2 my (re)birthday.

Having gone through what I have during the past year, I’m returning to professional life with a reinvigorated commitment to help the nonprofit community be more efficient and effective so we can make the world a better place.

I’m doing a number of private and public things this month to celebrate. While I normally ensure that my blog site remains largely non-commercial, I’m making an exception with this post because I want to enlist your help as I mark this important time in my life.

There are a number of ways you can join my (re)birthday celebration:

New Clients. I’m looking for at least three new clients. If you’ve found my blog posts helpful, imagine what we can achieve by working closely together, as some readers have already discovered. If you work for a nonprofit organization, I can help you with annual fund enhancements, donor retention efforts, ethics education and policy development, phone fundraising improvements, planned gift marketing, and training for staff and/or boards. If you work for a for-profit company serving the nonprofit sector, I can help you with service/product enhancements, new service/product development, and marketing.

Please contact me if you would like to discuss how I can help you achieve your goals.

Paid Speaking Engagements. As part of my return to professional life, I’m looking forward to getting back out on the speaking circuit. I’m an experienced, well-reviewed presenter and AFP Master Trainer. I’m also an adjunct faculty member at Drexel University where I teach Advanced Fund Development to graduate students. For your organization, I can facilitate a variety of training programs for your board, staff, or volunteers. For your professional associations, I can offer a variety of seminars or keynote presentations to meet the group’s needs and particular interests.

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September 5, 2014

Cheating Death

Recently, Death came knocking on my door. I did not answer; it seemed like the smart thing to do. It worked.

Now, I have completed treatment for my abdominal cancer (Pseudomyxoma Peritonei, often referred to as PMP). I’m in remission, and my oncologic surgeon expects me to live a reasonably healthy, full life.Death by thom via Flickr

Despite the miraculous treatment outcome, I’m still a long way from normal. My recovery continues as I focus on healing, regaining strength, and putting on weight. While I concentrate on a return to good health, I will gradually re-engage in professional life between now and the end of the year.

I wish my progress were much quicker. However, as I look back over my shoulder, I realize that I’ve been on an extraordinary journey over the past seven months. Here’s a brief recap of what has happened:

February 2014 — Leading up to my routine physical, I knew it would be more than routine. My abdomen had become inexplicably distended despite having shed some extra weight. In addition, I had a persistent cough for more than a month.

At my February physical, my doctor poked around and, with a concerned look on his face, told me he wanted me to have an abdominal CT Scan. While inconclusive, the CT Scan showed growths and fluid build-up. More tests and visits to specialists immediately followed as part of the diagnostic process.

March 2014 — By the end of March, my lead cancer specialist gave me my diagnosis and prognosis. He informed me that I had PMP, a rare cancer with fewer than 1,000 diagnosed cases worldwide each year. The doctor believed that I likely had the slow-growing appendiceal form of PMP, and that I probably had it for about ten years. Without treatment, my life expectancy would be about two years. Unfortunately, given the severity of my case, treatment would likely only give me a five-year life expectancy.

Treatment for my form of PMP involves surgery and HIPEC, a heated chemo infusion at the time of surgery. The Philadelphia PMP expert held out little hope that treatment would be able to remove all of the disease. However, he did recommend that we get a second opinion from Dr. David Bartlett at the University of Pittsburgh Medical Center. Dr. Bartlett and his team are among the world’s most experienced at treating and researching PMP. So, based on our own investigation and the recommendations of multiple doctors, we made an appointment with Dr. Bartlett.

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June 10, 2014

Progress Report

“Look! It’s moving. It’s alive. It’s alive. It’s alive, it’s moving, it’s alive, it’s alive, it’s alive, it’s alive, IT’S ALIVE!”

— Henry Frankenstein from Frankenstein (1931)

 

It’s been over two months since I first reported to you that I was diagnosed with an extremely rare form of slowly progressing abdominal cancer: Pseudomyxoma Peritonei (PMP). So, I thought it was about time I provided you with a progress report.

The bottom-line is that I’m very much alive and doing better each week.

Here’s what’s been going on:

My wife and I traveled to Pittsburgh, PA so that I could undergo surgery on May 2, 2014 with Dr. David Bartlett at the University of Pittsburgh Medical Center. Dr. Bartlett is one of the world’s leading PMP surgeons and researchers. His surgical team and the nursing staff are experienced and fantastic.

Frankenstein (1931)

Frankenstein (1931)

My surgery was massive. I was on the table for nearly 14 hours. Approximately 30 pounds of mucin and several organs were removed. In addition, cancer growths were scraped off of other organs. Finally, I was treated with HIPEC, a heated chemo infusion. After approximately three weeks in the hospital, I was released and headed back to Philadelphia a few days later.

The fantastic news is that the expert surgical team reports they were able to extract the cancer and that they consider the surgery a “complete” success. In a few weeks, I’ll return to Pittsburgh for an anticipated follow-up surgery that will keep me in the hospital for about four days. After that, I’ll be completely done with treatment.

While my treatment will conclude shortly, I will continue to undergo frequent diagnostic testing. While successful as a treatment, the surgery is not a cure. Although I am now classified as being in “remission,” the cancer is expected to return someday. Fortunately, Dr. Bartlett believes this will not happen for many years. When it does, we’ll catch it early so that it can be beaten back with a far less aggressive treatment and, perhaps, with a breakthrough therapy.

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