Recently, Death came knocking on my door. I did not answer; it seemed like the smart thing to do. It worked.
Now, I have completed treatment for my abdominal cancer (Pseudomyxoma Peritonei, often referred to as PMP). I’m in remission, and my oncologic surgeon expects me to live a reasonably healthy, full life.
Despite the miraculous treatment outcome, I’m still a long way from normal. My recovery continues as I focus on healing, regaining strength, and putting on weight. While I concentrate on a return to good health, I will gradually re-engage in professional life between now and the end of the year.
I wish my progress were much quicker. However, as I look back over my shoulder, I realize that I’ve been on an extraordinary journey over the past seven months. Here’s a brief recap of what has happened:
February 2014 — Leading up to my routine physical, I knew it would be more than routine. My abdomen had become inexplicably distended despite having shed some extra weight. In addition, I had a persistent cough for more than a month.
At my February physical, my doctor poked around and, with a concerned look on his face, told me he wanted me to have an abdominal CT Scan. While inconclusive, the CT Scan showed growths and fluid build-up. More tests and visits to specialists immediately followed as part of the diagnostic process.
March 2014 — By the end of March, my lead cancer specialist gave me my diagnosis and prognosis. He informed me that I had PMP, a rare cancer with fewer than 1,000 diagnosed cases worldwide each year. The doctor believed that I likely had the slow-growing appendiceal form of PMP, and that I probably had it for about ten years. Without treatment, my life expectancy would be about two years. Unfortunately, given the severity of my case, treatment would likely only give me a five-year life expectancy.
Treatment for my form of PMP involves surgery and HIPEC, a heated chemo infusion at the time of surgery. The Philadelphia PMP expert held out little hope that treatment would be able to remove all of the disease. However, he did recommend that we get a second opinion from Dr. David Bartlett at the University of Pittsburgh Medical Center. Dr. Bartlett and his team are among the world’s most experienced at treating and researching PMP. So, based on our own investigation and the recommendations of multiple doctors, we made an appointment with Dr. Bartlett.