Posts tagged ‘leave of absence’

June 10, 2014

Progress Report

“Look! It’s moving. It’s alive. It’s alive. It’s alive, it’s moving, it’s alive, it’s alive, it’s alive, it’s alive, IT’S ALIVE!”

— Henry Frankenstein from Frankenstein (1931)

 

It’s been over two months since I first reported to you that I was diagnosed with an extremely rare form of slowly progressing abdominal cancer: Pseudomyxoma Peritonei (PMP). So, I thought it was about time I provided you with a progress report.

The bottom-line is that I’m very much alive and doing better each week.

Here’s what’s been going on:

My wife and I traveled to Pittsburgh, PA so that I could undergo surgery on May 2, 2014 with Dr. David Bartlett at the University of Pittsburgh Medical Center. Dr. Bartlett is one of the world’s leading PMP surgeons and researchers. His surgical team and the nursing staff are experienced and fantastic.

Frankenstein (1931)

Frankenstein (1931)

My surgery was massive. I was on the table for nearly 14 hours. Approximately 30 pounds of mucin and several organs were removed. In addition, cancer growths were scraped off of other organs. Finally, I was treated with HIPEC, a heated chemo infusion. After approximately three weeks in the hospital, I was released and headed back to Philadelphia a few days later.

The fantastic news is that the expert surgical team reports they were able to extract the cancer and that they consider the surgery a “complete” success. In a few weeks, I’ll return to Pittsburgh for an anticipated follow-up surgery that will keep me in the hospital for about four days. After that, I’ll be completely done with treatment.

While my treatment will conclude shortly, I will continue to undergo frequent diagnostic testing. While successful as a treatment, the surgery is not a cure. Although I am now classified as being in “remission,” the cancer is expected to return someday. Fortunately, Dr. Bartlett believes this will not happen for many years. When it does, we’ll catch it early so that it can be beaten back with a far less aggressive treatment and, perhaps, with a breakthrough therapy.

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April 4, 2014

Delivering (My Own) Bad News

I don’t want to mislead you. So, let me be clear from the start. This post is less about how to deliver bad news and more about, well, me sharing some bad news with you. Nevertheless, in keeping with the spirit of this blog site, I will include some relevant tips at the end.

First, I want to share some terrible, personal news with you.

As you may know from some of my previous posts, the past couple of years have been a challenging time given my wife’s fight with Ovarian Cancer. Now that she continues to be in remission, we were looking forward to a happy, relatively normal 2014. Unfortunately, that’s not to be the case.

I have been diagnosed with Pseudomyxoma Peritonei (PMP), a slowly progressing abdominal cancer. PMP is rare. Medical professionals diagnose fewer than 1000 cases per year worldwide, according to some researchers.

Frowny Face by khaybe via FlickrAt this point, I have no pain and very little discomfort. My only significant symptoms are a distended abdomen, an annoying cough from the pressure on my diaphragm, and weight loss beyond what I was shooting for. However, left unchecked, my condition would soon change for the worse. Therefore, in the coming weeks, I will undergo surgical treatment. This will require a lengthy hospital stay and recovery period.

Unfortunately, there is no cure or even remission for PMP. Treatment will beat it back. Then, I have to hope it comes back very slowly.

Now, and for at least the next few months, I need to focus 100 percent of my energy on regaining as much of my health as possible. So, I’ll be taking an indefinite leave-of-absence from my blog, professional life, and most social media activity. I look forward to re-engaging as soon as I am able.

Meantime, here are some things that you might consider doing, in no particular order:

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